all 53 comments

[–]hashmarksADHD-C 12 points13 points ago

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Upvoted. I think the changes are great ideas. I've definitely noticed an influx of repeats lately and it really cuts down my appeal for responding to anything.

[–]computerpsychADHD facilitator+coach+enthusiast[S] 5 points6 points ago

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Totally. I was reading /r/adhd every day so I really noticed the repeats. I had to take a break to rejuvenate myself...but I am back!

[–]schminADHD-PI[M] 7 points8 points ago

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I still have issues reading /r/ADHD (and it's almost the only reddit I ever visit anymore). When I see all the repeated titles, I can only occasionally force myself to click one or two -- part of it is the fear of the recrimination I sometimes get for asking posters to observe the rules of the subreddit and the reddiquette itself.

I do love posting the Kick-Start Sunday and Win Wednesday threads and following up there -- people are so happy for the support. It's also almost the only feedback we get, too!

I think sometimes redditors here forget the mods are all ADHD as well -- we get overwhelmed just as easily! =P (And the number of mods were doubled to handle the load 1-2 months ago -- then the subscribers increased by 50% after that.)

EDIT: This is not official subreddit thoughts, just showing that I'm chiming in as a moderator.

[–]eternalvoyageur 3 points4 points ago

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I agree with all of the above. Another Q -- could the kickstart Sunday begin earlier? I´m in Europe, and our Sunday starts a bit earlier... I was getting desperate waiting for the thread to start!

[–]schminADHD-PI 1 point2 points ago

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Well the hope is to get it out in time to plan your week before Monday. It mostly depends what time I get up/remember/have time for the internet. =P I'm guessing you're about 8 hours ahead of me, so what time works for you (no guarantees) and what time zone are you in?

[–]eternalvoyageur 1 point2 points ago

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I´m in central europe, and it would be nice if I could plan my week around late afternoon / evening; without keeping on checking /r/ADHD instead of going to bed. But I fully understand that you´ve got a life too.

[–]computerpsychADHD facilitator+coach+enthusiast[S] 1 point2 points ago

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The post stays pretty static. You can write out all your items in Reddit formatting somewhere else and copy/paste. Use a template from the previous week.

I think that by going up mid-afternoon on Sunday, it will still be high up on Monday when the non-weekend Redditors come on. If the actual post got more upvotes then it should still be high even if posted Sunday morning...

[–]hashmarksADHD-C 1 point2 points ago

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I noticed the uproar that follows that sometimes. It's completely unfair when you're just trying to help and control quality.

I love those threads. KSS has basically been the cornerstone of my new and healthy coping mechanisms/life transformation. The support here is unreal. Especially when you're accustomed to a lifetime of negativity in response to your failures, and a shrug in the face of your accomplishments. ("Oh, you got a shower and went grocery shopping with a list? Big deal, people do that every day").

That is probably an accurate assumption. I definitely don't fault mods for the repetition. There really isn't much that can be done if someone comes here for the first time and refuses to read FAQ or do a search, which is a common occurrence.

I think you guys do a good job inputting time and resources into what matters: a feeling of continuous support, and not just limited to KSS and WW.

[–]computerpsychADHD facilitator+coach+enthusiast[S] 0 points1 point ago

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Glad to hear that KSS is helping you out! I created both of those threads using what I have learned as a coach. Basically using some of the structure a coach might offer (asking for potential obstacles, noticing the positive).

The format has remained mostly the same as I initially created it. The hard part is catering to various types of planning styles. If there is any way we can make KSS more helpful for YOU then please pass it on.

[–]facepalmingdaily 6 points7 points ago

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Thank you for breaking this into sections for me. Now I realize why I usually skip over these kinds of posts. I had no idea that page breaks and different fonts could help keep me interested.

[–]computerpsychADHD facilitator+coach+enthusiast[S] 1 point2 points ago

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Thanks! I really wish reddit allowed more spacing as well. I would ideally like more blank space and more colors. But, this is the best I can make the formatting currently!

[–]eternalvoyageur 3 points4 points ago

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There should also be a books thread -- reviewing books about ADHD. Main comments should be the book titles, and child comments with reviews. Also a thread about tools and coping techniques. Both should be on the sidebar, IMHO.

[–]sugardeathADHD-PI 0 points1 point ago

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I think some of those are in the FAQ? But a search for book did not turn up anything.

I like these ideas. Thank you for bringing them up, I've made note of them :)

[–]greenearrowADHD-C 5 points6 points ago

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How about we follow the /r/games vs /r/gaming example, and make a subreddit for the less serious discussions? I for one think it's important we keep a place for people to express their aggravations as well as their triumphs. I don't want to subdivide the community too much, so /r/adhdmeme for pictures, and /r/ADHDhangout for text? Any better suggestions for names are welcome.

I would also vote to have rules regarding the more "scientific" posts by people who do not have ADHD. This post http://www.reddit.com/r/ADHD/comments/ugm2n/adhd_survey/ treats this subreddit as a study group. I am here for support and information, not to be a lab rat. I am not stating these must be banned, but we need to have a community discussion regarding their appropriate place within this subreddit.

[–][deleted] ago

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[deleted]

[–]computerpsychADHD facilitator+coach+enthusiast[S] 0 points1 point ago

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Makes sense to me!

[–]sugardeathADHD-PI[M] 1 point2 points ago

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I did not quite get that feel from the survey post and was glad to contribute (and hear back about some results!), but I understand where you are coming from. There have been a few posts by "outsiders" so to speak, that just.. feel wrong. At least in this case, Mr. Survey was not attempting to tell us what to do to manage our condition, he was just asking if we'd participate in an informal survey.

You make a good point, though, and this is something that does deserve further discussion. If it feels like we're not making any progress on this or taking it seriously, feel free to message the mods and poke us. We also have ADHD, so.. I'm sure you can imagine we'll forget or get distrated a lot =P

[–]schminADHD-PI 0 points1 point ago

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Punctuation and spelling distractions included to prove the point. =P

[–]computerpsychADHD facilitator+coach+enthusiast[S] 1 point2 points ago

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I was thinking possible options include /r/adhdmeds or /r/adhdnoob. I agree, I don't want to create too much of a division and the success of sub-subreddits hinges on knowledgeable members being willing to help out and answer questions there.

As for the rules around scientific posts...that person DID message the mods and we felt like it would be fine if allowed (although initially I was skeptical). This was the first person who has made a survey that actually came back to share some of the results! The downvotes on the original thread did show that other people did not like the tone of the message.

I think your idea for a self post only subreddit (/r/adhdhangout) where we can share our small wins or whatever is on our mind would be great. I often have short questions or things I want to share, but I don't want to clutter /r/adhd.

[–]schminADHD-PI[M] 3 points4 points ago

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I think (for now) weekly threads for medications and introductions/basic questions would corral the repetition and not divide the community.

I fear separate subreddits could lead to the more experienced members crankily insisting "noobs belong in /r/adhdnoob" for instance.

I'm also wary of setting up a separate 'medication' reddit, as I think that would be harder to keep aboveboard.

I do like the idea of a subreddit for those who want daily support (like kSS and WW).

EDIT: This is not official subreddit thoughts, just showing that I'm chiming in as a moderator.

[–]computerpsychADHD facilitator+coach+enthusiast[S] 2 points3 points ago

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I agree. I definitely want to make a subreddit for people who are willing to take action and I can lead a group through coaching exercises and help support them with powerful questions.

I know changing and taking action can be hard. There is a reason so few people have ever taken me up on my complementary coaching. But the effort is worth it!

[–]Cherrytop 1 point2 points ago

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Uh.... I'd gladly accept some coaching. :) If you're really offering.

[–]schminADHD-PI 2 points3 points ago

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Well come on over to Kick-Start Sunday -- that's what we're there for! =) (And we're here all week, so you can start any day.)

EDIT And also, there is /r/adhdcoaching.

[–]computerpsychADHD facilitator+coach+enthusiast[S] 2 points3 points ago

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Way to link to an empty subreddit.

[–]schminADHD-PI 1 point2 points ago

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I have faith in you. ;)

[–]ADHD_Coach -3 points-2 points ago

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That one is kind of empty. This one isn't though

[–]computerpsychADHD facilitator+coach+enthusiast[S] 1 point2 points ago

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Kind of? It is COMPLETELY empty! I will start filling it up today though.

[–]schminADHD-PI 0 points1 point ago

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I actually subscribed to your subreddit ages ago, but never found any novel information that felt like it applied to me -- most of it seems either repeating very basic guidelines I already know without the stepwise details that I need. Or the linked articles seem written by people who don't truly understand ADHD -- whether it shows up in their website design or their writing style. I was hopeful and tried many times, but I've since given up. (And for the record, I don't think I've seen your posts much/since here in /r/ADHD, and I've certainly never deleted one.)

[–]AndropopolipsADHD and Parent 1 point2 points ago

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I definitely think that deviding the community would be a mistake and would turn into a situation where half of the posts would be along the lines of "noobs belong in /r/adhdnoob".

It would be great if there was a system like the capability in RES on /r/gonewild to tag your posts as [Noob], [Meds], [Q&A], [Win], [HELP ME], etc. and be able to filter the posts that show on the fly to only show the ones you're looking for. Basically be able to turn the type of postings that you're seeing on and off depending on what you're here for...

[–]schminADHD-PI 0 points1 point ago

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Well we know where you've been. ;)

We have been considering such things, but have yet to find the example CSS to adapt -- this may be just the ticket! Thanks.

Oooh, are those auto-tagged, or self-tagged?

[–]AndropopolipsADHD and Parent 1 point2 points ago

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Haha, yeah. I just pulled down the crx for RES and extracted the js from it, it looks like it pulls the [m] and [f] strings from the text in the thread title, selects the post, and selectively expands the "show images" toggle for those items. It shouldn't be too hard to modify the script to identify different tags (such as those mentioned) and toggle them to show/hide the items completely. When I get some spare time I'll have a play with the code and see if I can create the script and a UI with select boxes to do it.

[–]Cherrytop 1 point2 points ago

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How about a thread for ADHD Work? I'm really curious to hear how others manage their career and their ADHD.

[–]computerpsychADHD facilitator+coach+enthusiast[S] 3 points4 points ago

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You could always start one (Meowjin did today). I don't know if a weekly thread on ADHD and work would be useful. Maybe monthly?

[–]sugardeathADHD-PI[M] 2 points3 points ago

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There has been modly discussion of a Tips Tuesday kind of thread or something.

(Or maybe I just had this discussion with myself and the IRC bot...)

Basically, it was kind of like the proposed FAQ Friday where one question is tackled each week, but for Tips Tuesday it'll be one situation that is common to most if not all of us and then people contribute what works well for them.

[–]chekawaADHD and Parent 0 points1 point ago

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I appreciate the support, and I think of that scientific information as a form of support. Repeats and rants are one thing, but we can't filter out every type of thread that people might not want to see - we don't have to click them all.

[–]greenearrowADHD-C 5 points6 points ago

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My issue with that survey was that when results were given, answers expected from people with ADHD were said to be the "wrong" answer. Don't come here and judge us while calling it science.

[–]chekawaADHD and Parent 1 point2 points ago

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oh, I see what you mean - I wasn't even thinking of a particular thread. I just don't think we need to create a subreddit for studies/science/researcher posts.

[–]greenearrowADHD-C 1 point2 points ago

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I don't think that specifically needs a subreddit, but I do get a little aggravated by posts by "outsiders," and I found that researcher to be condescending. I'm just advocating a discussion to see if we need a policy.

[–]sugardeathADHD-PI 0 points1 point ago

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Well, there's expected answers and then there's everything else. I don't believe the intent was to judge, but better words could have been chosen.

[–]GeekYogurt 5 points6 points ago

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As a newer member of r/ADHD, having my first ever post deleted and my hand slapped by a mod was a very unwelcoming way to be greeted and forever stained my opinion of the place, and said mod.

I'm not saying "anything goes" is better... I'm saying, maybe just censure repeat offenders instead of alienating your peers.

There, off chest.

[–]computerpsychADHD facilitator+coach+enthusiast[S] 2 points3 points ago

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Sorry about that if it was me! (I think it was)

We only have really removed posts that are almost exactly like past posts we have had on the subject (or if they violate our few rules) AND we are sure to link you a list of all the relevant past posts so you can get the help you need and/or provide an answer.

I understand that removing the post of someone who finally got the nerve to post in /r/adhd could leave them upset, but most of the posts ARE from new people and on topics which have been covered ad nauseam.

That is why we are trying to have the community help us develop rules so we can both have an understanding what will be removed. Back when we removed your post, it was likely when we first started to remove posts.

Thanks for sharing your experience!

[–]schminADHD-PI[M] 1 point2 points ago

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I'm sorry if you felt hurt -- I think in that case there were complaints from some who found it offensive. In a case like that no one wins; not the poster, the readers, or the mods. I hope it doesn't deter you from posting positive and/or scientifically-minded posts!

[–][deleted] ago

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[deleted]

[–]sugardeathADHD-PI[M] 3 points4 points ago

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Thank you for taking the time to write this.

In fact, it works so well the numbers are climbing fast as you note.

Something does appear to be going well, huh =P

We have received complaints from a variety of users that some posts are getting repetitive and kind of overwhelming. But then we see the massive amounts of upvotes that suggests other parts of the community seemingly enjoy the posts.

We're trying to to find the best solution here, and that definitely involves the community at large.

*We definitely need to work on consolidating resources into the sidebar or something, and I think that will start to help with the repetition. *


..but deleting the post angrily because it was covered a few months ago wouldn't be.

I don't want to sound rude, but I can't find where it was suggested that repeat posts be deleted. Just the super vague titled ones. Honestly, if we kept the same post ratio, but with more descriptive titles, then I think things would still be far better.

It can be very irksome for us to constantly have to dig up the old posts and relink them, but you are absolutely right: There has to be a cut off point. I think it should be sooner than when voting is disabled. Active discussion often dies off far sooner than that. I think posting the links is still great as a resource, but at a certain point that's all it should be, instead of a redirection.

More discussion will be required on this issue, it appears.


Schmin covered the DAE thing already, but I just want to add:

I don't find it easy to engage in them. DAE posts are, by their very nature, simple yes/no questions. I read it, answer yes/no, and then move on to the next thing. A better formulated question that invoked thought or inspired conversation would pull me in.

I know I'm but one person, though.


Why would we want to take a stand against people asking questions of their fellow subreddit friends on that topic [medication side effects]?

I see it as a twofold issue:

  1. Repetition: It feels like there's an endless stream of posts asking about the side effects one should expect on [drug]. A simple search for the name would turn up a ton of posts that already discuss this. -- A google search would turn up even more information.
  2. Biased information: My experience on adderall may mirror your experience perfectly. It may only overlap slightly, or we may have horribly different experiences. Everyone reacts differently to medication, so when I tell you that I experience [supremely terribly bad effect] on Adderall, it would be unwise of you to not give Adderall a shot just because you're afraid of the same thing happening. For all you know, it won't happen, and the only way to find out is to try. And besides, there are tons of reliable sources of information that lay out the possible side effects of each drug.

I feel it is more responsible as a community and as a patient to not base decisions or opinions off of someone else's experiences, but instead of proper research and personal experience.

It's not that we want to prevent people from asking questions, we more want to encourage research instead of looking for the easy answer that may not even apply.


Now, posts like

How does one deal with excessive sweating on Adderall

I find to be 100% acceptable, since it's not simply asking if it's a side effect, but instead how to deal with it. This is where I find community answers to be valuable.


Thanks for helping moderate such a great subreddit and considering my views.

No no no no. Thank you for being part of this community. We truly do love seeing this place grow and seeing the support network that is developing. And a big thank you for sharing your concerns. Community involvement is key. Without you guys.. well, there'd be nothing here. I believe further discussion on some of these points is indeed warranted, and it is extremely valuable to us that you shared your views.

I really don't want to give that boiler plate "your opinion is important to us and we will consider it highly" crap, but.. what you have said will definitely stick in my mind as we go further here. You make some great points that I do agree with.

[–]schminADHD-PI[M] 2 points3 points ago

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I think the idea is just that there's more descriptive titles than 'DAE Sweat' such as "Is excessive sweating a side-effect of Vyvanse--I didn't experience this on Adderall." Most people will see "DAE...", think 'Yes I do' and upvote, but not actually read the post or contribute to the discussion. What we want to mitigate is the 'up/down-vote if you dis-/agree' mentality, which is not helpful to the OP, and promote discussion instead, which is more likely to help the OP.

And not so much removing posts because there was a similar one last year, but having a weekly thread for people discuss medications/side-effects. We don't want to delete any posts -- we just want to group them together so it's not so overwhelming for the subscribers (we've had complaints about this) OR the moderators. We have ADHD too, and the number of mods were doubled to handle the work before the 50% subscriber increase.

[–]Daddy2BADHD-PI 2 points3 points ago

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I wish there was a way to highlight those who were diagnosed as adults and those from when they were children or teenagers. its different being diagnosed later in life and its a pain to swim through all the "Im at college and..." posts.

[–]computerpsychADHD facilitator+coach+enthusiast[S] 2 points3 points ago

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Maybe flair for people over 30? I agree that people 25+ would have a different view and knowledge that medication is not the only answer. Let me know what ideas you or others have to do t his.

[–]Daddy2BADHD-PI 1 point2 points ago

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Flair is not a bad idea, that could work. Flair that points out the age you were diagnosed and if in fact you are diagnosed? Hmmm.

[–]computerpsychADHD facilitator+coach+enthusiast[S] 1 point2 points ago

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Well we already have flair for the type of ADHD. But, I think the fact that someone is over 30 is more helpful than knowing the type of their ADHD at that point. I COULD create flair using all the current flair options and just add 30+ or something at the end.

[–]schminADHD-PI 1 point2 points ago

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I think that diagnosed in or by High School is still very different from those of us who weren't diagnosed before a failed attempt at college. How about diagnosed before/after 18, 20, moving out of parent's house, or starting/failing college?

[–]eternalvoyageur 1 point2 points ago

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This will probably be seen as controversial, but I´d also love to see a thread for alternative approaches, that means meditation, natural and alternative medicine, as well as no-meds attempts. A thread where people who choose to try out these approaches (or just inform themselves about them) could exchange information without getting everyone telling them they need to try out different meds. I know there are plenty of people on here who do stuff like herbs and meditation for their ADHD, and I have the impression that so far they don´t have the space to discuss this stuff, they only mention in corners of other threads.

[–]schminADHD-PI[M] 1 point2 points ago

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  • Discussion of supplemental techniques such as meditation and eating well is welcomed. Discussion of 'alternative medicine' must be kept on a scientific basis, and there's just not much peer-reviewed information in that realm -- the problem with 'un-limited' discussion in this subject is that some readers might take it as medical advice, which is against Reddiquette/TOS. Without science behind it, we can only insist everyone do a thorough food diary to assess their current nutrition and discuss any perceived deficiencies with their doctors. Many 'holistic medicines' can interfere with pharmaceutical medicines in ways none of us are qualified to discuss. (Such as acids including citrus and vitamin C can interfere with ADHD medication absorption.) Not everyone here has only the single condition of ADHD, and some other conditions may remain as-yet undiagnosed. This would be a difficult thread to moderate, but we do have a supplemental techniques thread in the works!

  • No one insists people need to be medicated, but rather question why the fears of medication exist. Many of us who currently swear by pharmaceutical medication as the tool that allows us to learn the behavioral modification techniques were once ourselves afraid of ADHD medications, and we know 'you don't take the ramp away from the wheelchair-user after a month of practice getting into the building.' =P

[–]computerpsychADHD facilitator+coach+enthusiast[S] 1 point2 points ago

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I have found meditation, mindfulness, and yoga to be extremely helpful in my treatment. We don't ever censor anything on these topics.

The main things we are worried about are people saying I took XX supplement and feel a 1000% better!. Maybe it is placebo. Maybe they started sleeping an extra 2 hours each night...we don't know. The supplement may not be safe for a variety of reasons.

I don't know if any herbs/supplements have been proven to be helpful for ADHD. I have tried most of them...L-theanine, DLPA, L-tyrosine, gotu kola...nothing has really had a noticeable effect.

[–]bluesquaredADHD-PI 2 points3 points ago

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I absolutely love the Proposed New Posting Rules (1-6)! Posting this before I forget to say this, cooking dinner atm...

[–]ADHD_Coach -3 points-2 points ago

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It would be nice to see a link to /r/adhd_coaching in the side bar.