History:
I have glioblastoma multiforme (GBM), a highly aggressive form of brain cancer. I had the tumor removed in March 2011, but I just learned that it has begun to regrow in my brainstem. The tumor is inoperable, and the standard of care for recurrent GBM only offers a few extra months of survival. I'm enrolling in a clinical trial, but no one knows if this treatment will be effective. Unless this treatment is the next big drug for GBM, my estimated survival is less than 6 months. Because the tumor is fast-growing and in my brainstem (controls many vital functions) it will kill me quickly.
Anyway, for the time being, I am otherwise healthy. Besides a mild headache occasionally, I don't have any symptoms from the tumor. I am physically able to do just about everything I could before I had cancer. Do you guys have any suggestions for genuinely fun things I ought to do before dying? I don't want to do anything "for the sake" of doing it; I just want suggestions for things you've done that you've really enjoyed or that were life-changing. So, barring cheesy things like "see all 50 states!" I'm up for anything.
EDIT: I'll be living in the Boston area for a month for treatment, then traveling between there and the St. Louis, MO area (home) every two weeks after that. The treatment I'll be on is Plerixafor+Avastin, Avastin being the current standard of care for recurrent GBM and shown to add 2-4 months on average to survival. There's a good chance that the side effects of this treatment will be mild, so I should be able to do most things outside of the first month where I'm stuck in Boston.
I am female, and have a boyfriend that will be with me the whole time.
EDIT 2 - PROOF, here are some pics:
Pre-cancer: http://imgur.com/13DCy
scar after surgery: http://imgur.com/Rtbhb
my hair starting to grow back in after radiation;it grew at different rates due to varying doses of radiation at different angles and i was also doing this dumb thing where i let one front tuft of hair grow long: http://imgur.com/13DCy,Rtbhb,KccuR,GIKSu,LUjh2,QGG7B#2
this is my head now, the hair never grew back where they sent the most powerful dose of radiation. my hair also grew back really fluffy (it used to be straight): http://imgur.com/13DCy,Rtbhb,KccuR,GIKSu,LUjh2,QGG7B#3
a slide from my recent MRI, you can see a mass in the right (mirrored, really its on the left) cerebral peduncle. it's that mickey-mouse-head lookin' thing in the center: http://imgur.com/13DCy,Rtbhb,KccuR,GIKSu,LUjh2,QGG7B#4
EDIT 3: I'm calling it a night, but wanted to say a few more things:
Thanks so much for all of the responses. I expected a lot of generic responses but got some really good ideas from all of this. In particular, I might just start video recording everything I can, and showing the good stuff to friends and family after I die as sort of a "previously unreleased footage" thing. I also really appreciate all the offers from people to show me around their city. I'll be PMing some of you tomorrow for sure.
Regarding drugs: I have been vaping at least daily for over a year. Who knows if it's doing anything but I figure it probably isn't hurting. I'm open to MDMA (assuming it's the real stuff) but will probably save that for closer to the end of life (but before the really important shit in my brain stops working).
Finally, I should clarify by saying I'm not planning on "giving up" at this point, but I need to be realistic about my circumstances. Of course there is the chance that the treatment I get is some miracle cure (or death postponer), but I think it's also healthy to be prepared mentally for death when there's over a 99% chance that it's coming soon. There is something calming about accepting it and adjusting your reality accordingly.
EDIT 4 - SURGERY/CHARLES TEO:
A lot of people are commenting about Dr. Teo so I wanted to add a bit in here. I am not ruling out surgery as a last resort, and I know of a neurosurgeon in the states that might do it (Dr. Allan Friedman at Duke - he is extremely good). It's not so much that it's impossible to remove a brainstem tumor, but that it's not worth it given my circumstance. The tumor would regrow very quickly (~2 months), meanwhile I might be unable to speak, breathe on my own, or move one side of my body. It's important to note that this is a recurrent GBM tumor; these are the cells that didn't respond to radiochemotherapy, and they're highly infiltrative. My original tumor was located about 10 cm away in my frontoparietal lobe and was completely removed (gross total resection) in my first surgery. Remaining microscopic cells, however, moved all the way to my brainstem - these things are not going away with another surgery. Since I don't have symptoms now, it would be tragic to go through all of that, end up unable to perform basic functions, and then still die in a few months.
Also, you will all have to take my word for it that I've done a lot of research about my treatment options. I've met with dozens of doctors at top research hospitals, and I've looked extensively into almost every "miracle" treatment out there. Not that it means much, but I was also a psychology undergrad with a focus in neuroscience. Before all of this happened, I was planning on going to graduate school in cognitive neuroscience.
I'm open to questions about brain cancer too, but I'll do an AMA for that if people are curious.
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